What We Do
We provide palliative care and end of life care for children and young people and their families. We focus on enhancing quality of life, for all those affected by life shortening conditions which includes physical comfort and wellbeing, as well as the emotional, social and spiritual aspect of care. We offer an inclusive service that embraces all faiths, beliefs and cultures.
We can offer care in people’s own homes or at Russell House, our purpose built hospice in Huddersfield. We are a 24 hour, 7 days per week service which includes:
- the management of distressing symptoms
- provision of short breaks (respite care)
- end of life care
- bereavement support,
- siblings, parents and grandparent’s groups,
- play and creative therapy,
- music therapy,
- complementary therapies
- neonatal support
end of life care
End of life care is care that helps all those with advanced, progressive, incurable illness to live as well as possible until they die.
It focuses on preparing for an anticipated death and managing the end stage of a terminal medical condition; this includes care during and around the time of death and immediately afterwards. It enables the supportive and palliative care needs of both the child and young person to be identified and met throughout the last phase of life and into bereavement.
It includes management of pain and other symptoms and provision of psychological, social, spiritual and practical support.
the care team
Our team is developing and changing, led by our Director of Care Sharon Burton. We are very proud to offer an integrated nurse and therapist led service. We have a team of highly experienced professionals with a diverse range of experiences and backgrounds, ensuring the services we offer are safe, reliable and effective.
The Team works with our children and families at home or in Russell House. This care will be planned by one of our Care Coordinators who will lead a small core team personalised for each family. We also have a Nurse Consultant who leads on the development of clinical management plans, symptom control plans and provides clinical leadership to the Care Co-ordinators.
the care we deliver
We care for families in their own homes and/or Russell House. Our Care Team is led by our Director of Care Sharon Burton. The Care Team includes experienced registered sick children’s nurses, a counsellor, play therapists, complementary therapists. Out of hours medical cover is provided by a team of GPs through Local Care Direct. These are supported by a specially developed team of support workers, housekeepers and a chef.
Children and young people are allocated a number of respite care hours per week that can be used at times to meet the needs of the child and family. This is supplemented In addition to planned respite care, we provide symptom management, palliative care, emotional and psychological support and 24 hour end of life care.
Our service is provided in partnership with other local service providers including children’s community nursing teams, health visiting services and social services. We are not a replacement for, or alternative to any existing services but complementary to them.
The house complements our existing hospice at home service, providing three planned respite beds, an emergency bed and the Snowflake suite. When a child and their family stay at Russell House, their core team will also care for them there too.
The care we are able to provide includes:
- Day care;
- Overnight (residential) short breaks;
- Symptom control care;
- End of life care;
- Emergency respite
- The Snowflake Suite (a self-contained apartment that families can use following the death of their child until the child’s funeral;
- Counselling and bereavement support for the whole family;
- Play, art and music therapy;
- Spiritual support;
- Complementary therapies.
*There is no charge to families for using any of our services.