A family sat on the grass on a sunny day smiling at the camera.

Children’s stories

While every family is unique, they’re all connected by the same concern for their child.

That’s why it can be so helpful to talk to other families and learn about their journeys – how are their situations different from yours, and how are they similar? So with their families’ kind permission, we bring you a selection of stories of children known to us here.

  • Read more

    Melissa's story

    Melissa’s family’s world revolves around their 5 year old daughter. And like all of the families we support, they wouldn’t have it any other way. But that doesn’t mean that caring for a child with complex health conditions isn’t really hard, demanding round-the-clock care.
    Read more
  • Read more

    Theo's story

    After trying for a baby for some time, Stacy and Stefan had come to accept that “it would just be the three of us,” with Stacy’s son Raymond. Then Stacy became pregnant with Theo. Very sadly though, Theo died shortly after birth. The family spent a few days with him in our Snowflake Suite. “We feel really lucky that we got to hold him.” 
    Read more
  • Read more

    Taniesha's story

    Diagnosed with a congenital heart condition before birth, Taniesha also has Downs Syndrome and has undergone a number of serious operations. She tires easily and can’t do as much as other children. Despite it all, “she’s full of life and loves dancing and music!”
    Read more
  • Read more

    Jacob's story

    When Jacob was 8 he was diagnosed with a rare form of epilepsy and mum Jackie became his full-time carer. When the family was told his condition was life-shortening in 2017, we got involved. “Forget Me Not could see I was more like a nurse and carer than I was a mum. They allowed me to be a mum again.”
    Read more
  • Read more

    Henry's story

    Henry is six and has spent most of his young life in and out of hospital and has a number of complex health issues. Henry’s family was referred to Forget Me Not when he was two. “We were really at breaking point so the hospice was a massive lifeline – somewhere Henry would be safe.”
    Read more