a small child's hands holding a basket

End-of-life care

We will walk the journey with you, from the start to the end – and well beyond.

It is devastating to be told that your child’s life is drawing to a close. Some families will have the time to plan and make decisions; for others, the end will be more sudden. Either way, we’re determined that this is a journey you won’t have to face alone. We’re here for you 24 hours a day, 7 days a week, 365 days a year. And both you and your child can expect kindness, professionalism and respect from us at all times

A time when experience really counts

It can be a huge source of comfort and reassurance to know that you’re in experienced but gentle hands at this most difficult of times. For example, if you ever felt undecided about the best or right thing to do, you’d have the support of a team which understands that your situation is absolutely unique to you, and that ‘best’ and ‘right’ are about you, not anyone else.

Outstanding care for your child

We can support you in ensuring that the end of your child's life is as comfortable and as happy (yes, happy) as possible. Whether you’re at the hospital, at our hospice or in your own home, we’re here to support your choice of where and how your child will spend their last moments. If you’d like your child to spend time outside of hospital, we’ll talk to you about advanced care, and we’ll make plans together. This can include advice around managing symptoms quickly and effectively, and what to do when changes happen. We will monitor your child's needs around the clock.

Outstanding concern for you

Our specialist team can offer rare understanding, insights and suggestions to help and support you. They’ll listen carefully to what’s important to you, and discuss all of your options with you. We respect the fact that no one knows your child like you do, so we’ll do everything we can to ensure that your wishes, and your child’s wishes, are met. The last thing we want is for you to have to deal with regrets and ‘what if?’s later on.

Making the most of your time together

The remaining time you have with your child is extremely precious, and we can help you decide how to make the best of it. For example, you might want to fulfil a wish list, do something special together, have really good photos taken, or create memory boxes. And don’t forget: ‘no’ is never an option here, because we believe in the magic of ‘yes’.

YOUR wishes respected

We’ll work with you and your child to create an end-of-life care plan which everyone can have sight of– including your GP, consultants, social workers… everyone. This can include how and where your child will spend their last moments, whether or not resuscitation should be attempted, and whether you’d like to use our Snowflake Suite. This plan can be changed at any time. It gives you much-needed control over what will be a very difficult time, and helps you make decisions in advance so you’re not forced to make them when you feel least able to do so.

Our care never stops

After the death of a child, our care and concern continues. You and your extended family will have access to our bereavement support, for example. And if there’s ever anything we can do for you, at any time, all you have to do is ask.

Talk to us

We’re here for you. Please call us on 01484 411040 or email care@forgetmenotchild.co.uk